Tomorrow is my mom's Birthday. Last year was a milestone birthday for her, but the celebration had a dark cloud over it because there was still a lot of uncertainty about Ryan. Today I received the best email ever from a medical professional. It said: Plan - discontinue oxygen. That's right. NO MORE OXYGEN!! He did it. I used to call his travel tanks his rocket packs... then I found this sleeper from Hatley:
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| R is for Rocket Man |
Last night we had our first 'deck party' and by deck party I mean, Sadie at ice cream at our new table, and I took pictures. We were anticipating it being Ry's last night with his prongs, and I think he knew it.
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| Baby Champion |
I still catch my breath when I think of what it means to be done with oxygen. It has been a part of our life for SO long. It wasn't hard get used to him without the feeding tube, and I don't think this will be a hard transition either. The thing I struggle with is reminding myself that he is no longer the sick little boy with an uncertain future. He's now a fragile little boy with a bright future. By fragile, I'm only referring to the need to keep those lungs protected from illness because we do not want any move visits from the medigas man ;-).
That's all I have time for tonight. This post just can't wait til tomorrow. Thanks (again) to everyone for all the support, words of encouragement, generosity, and understanding. His road is still a long one, but hopefully from here on it will be a smoother terrain.
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