March 5

Remember the lady in the elevator who said Ryan has a good set of lungs?  Well, she wasn't that off-base. Ryan had his 'Complex Respiratory Care' appointment at Sick Kids where they assess his oxygen requirement.  We're now continuing to wean him down. He came home on 1 Litre per minute.  We then weaned him to 3/4 L, then 1/2, and today they said we can try him on 1/4 during the day and even try for periods of 1/8 while he's awake.  Once he tolerates 1/8, the next step is turning it OFF for periods throughout the day.  IF we can keep him healthy and free from respiratory setbacks, he could be off for the daytime hours as soon as JUNE!! I get anxious thinking about protecting him from illness (as Martine can attest to after our trip to the opthamology clinic at sick kids today).  Having to wait in a very busy hallway with people coughing, sneezing, and just BEING near us made my skin crawl. The clinic is under construction so they had no rooms for us to wait in.  Luckily we found a corner near the end of a hallway away from the grossness.  In other good new, his eye appointment was somewhat encouraging.  He won't need the torturous bi weekly exams any more.  Although his eyes aren't fully vascularized yet, his vision is good, and the risk of any complications is minimal.  2 good things.  Now we just have to figure out the whole eating thing.... right.  The eating thing.......