Wednesday, December 26, 2012

Dec 26

Christmas is over... it was a big lead up toward the big day because we were on eggshells about germs.  All we wanted for Christmas was healthy kids.  Scott got hit with a wicked cold about a week ago, so this is how he spent the last week:

We hope the effort to avoid the germs pays off, but today Sadie came down with a mild fever.  We immediately shipped her off to my parents.  You might wonder about all the crazy germ control, but a friend of ours that we met in the NICU is going through a very hard time with her little guy.  He had a 'cold', and they took him in to get checked out... more than a week later, and he's currently at Sick Kids, back on c-pap and in the PICU.  He was a bit ahead of Ryan in terms of oxygen requirement and feeding... this is a huge setback for him.  His mom is an amazing woman who has this incredible ability to see the good in any situation (unlike myself!).  Their situation  has been weighing heavy on my mind all week.  I feel bad for them, and it is a big lesson in perspective.  We are very lucky to be where we are. It also is a reality check of how these wee guys just can't fight even the common cold.  Ryan has made great strides since he's been feeling better and we are working hard to keep him from having another big setback. Part of me knows it's inevitable, but in order to keep our consciences clear, we have to do EVERYTHING possible to protect him.  It is very hard as a mom to have to choose between your kids.  Sadie's sick, and I know that what's best for her is to be home, cuddling in her own bed, but when we look at the risk of her being home, we know that she'll be well taken care of at my mom's, and she can fight a cold like a champ, unlike wee brother.  I'm sure each cold it will get more tolerable (I won't say easier, because it will never get easier). 

Another notable moment came yesterday - Sadie had gone to my parent's for a change of scene.  I was with Ryan in his room and I had a moment of emotion about my friends in the ICU, and also just the day in general.  I cried.  All of a sudden Ry looked at me like, 'mom, come on, get over it, I'm gonna be ok.'  It sounds crazy, I know.  I put him on the bed, and he proceeded to laugh, smile, and coo like a 'regular' baby.  His timing was perfect, and after that he had a great day. We're still all learning a lot about ourselves, and each other. 
We hope everyone had a very merry christmas. 

Thursday, December 20, 2012

Merry Christmas!

I wish I could've sent one of these out to everyone who has been supporting us along Ryan's Road Home, but this will have to do.  Please know how thankful we are for all the support and encouragement.


Thursday, December 13, 2012

Dec, 13

Today's kind of a big deal. Back in June, when things were not going well for Ryan (the weekend we were advised to 'stay close' because our options were running out), there was a card at his bedside one morning with a follow-up appointment booked for Dec. 13.  I thought, hey - do they know something we don't? Is he gonna make it? Turns out the pre-booked appointment had nothing to do with his prognosis, it is standard practice for the follow-up team to see the babies at 4 months corrected.  The timing of said appointment was - interesting.  Anyhow, as we know Ry pulled through, and today's the day.  I'm a bit nervous because the reason they see the babes @ 4 months is because this is the time when physical and developmental disabilities can start to show... We know that he is in one of the highest risk for these things, but so far so good.  I'm just hoping if we stay on top of his developmental milestones, the impact of these disabilities will be minimized.... and using my wishful thinking powers that he will pull through and defy the odds, as he has done on many occasions before. 
Happy 4 months little big boy. (Sadie's new name for her little bro). 

Wednesday, December 5, 2012

Dec. 5

Just checked in on the ol' blog (while pumping), and noticed 17 000 pageviews! Guess Grandma, Grampy, and Papa have been busy checking on things ;-)

No time for an update but here's a treat: