Sept 16

We're in a bit of a state of limbo at the moment. Medically, Ryan's ready to come home...meaning he doesn't have any spells, and his oxygen levels are good. However - we're waiting on the home oxygen installation, he needs to have another hearing assessment done, and he's still not having oral feeds for the whole day.  They've given us the option of giving him a longer lasting feeding tube so that if he's too tired to finish his bottle, we can give him the rest of the milk through the tube.  It sounds intimidating and scary at first, but I've been learning how to manage all this kind of stuff over the last couple weeks, and we'd be 'trained' to deal with the tube before he comes home.  SO - this leaves us with the decision - should we wait it out at Sinai or move him up to newmarket.  We've been going over the pros and cons all week. If I had more time I'd write out the list here... but Sadie's due to wake up any moment.  My gut says get this kid home.  He needs consistent feeders, fresh air, and his family. From a selfish standpoint, I'm done with hospitals.  The bottom line is we do what's best for Ryan. Take everyone out of the equation and figure out what's best for him.  The staff doctor that is taking care of him now seems to be be a little on the fence - hence the limbo.  The only real benefit to having him in Newmarket is that we'd get to meet some of the team up in this area... will we not meet them anyways as outpatients? We're so close... but so far.... The tentative homecoming date was set for Thursday, but I don't know if it's really going to happen.
It's been a LONG road (over 140 days now) and out support system has been, and continues to be AMAZING.  Thank you to Leslie for her Guest post the other day.  Ryan is one lucky little dude with a huge cheering section behind him.  His room is coming together nicely, although it's not your typical nursery... we've put a single bed in there so that one of us can be with him and the other can sleep, he'll have a big oxygen tank, and a small pharmacy area for all his medication.  Toys R Us had an amazing deal on a pretty awesome video monitor that can zoom in on the baby, which is perfect so we can check to see his oxygen prongs are in correctly.  Our little house is going to be busting at the seams soon enough with all his "stations".  But... at least he'll be HOME.  Eventually.