Tuesday, June 5, 2012

June 5

I'm considering changing the title of this blog to Ryan's Rollercoaster Ride Home.  It's been a quiet few days of waiting for the PDA ligation.  Ryan's been stable and comfortable, and we've had some good quality cuddles. Sick Kids is a nice place to wait, but we definitely want to get this over with sooner than later. 
I shouldn't write this, but today the nurse told me that his latest Echo showed that the duct has gotten smaller.  That means, they're going to talk to the surgeon to take a look to see if it's even worth doing the surgery.  I haven't spoken to any doctors yet, which is why I'm hesitant to write this news, but it's all a part of the ride.  Who knows what this afternoon will bring...  In my opinion (which has been wrong 90% of the time) he still needs the surgery because his duct has gotten smaller before, then got larger again.  He's also still 'swinging' quite a bit which the nurses have all said is mostly a result of the duct being open.  I'd like to be wrong on this because no surgery is always a better option. 

Oh yeah - our big boy weighed 2 lbs 13 oz yesterday, remember he was born at 1 lb 12 oz!?  Gained a whole pound.  It looks good on him. 
Another nice thing is that Nancy has come over on her dinner break the last 2 days she's been working to check in.  

I also need to say another big THANK YOU again to everyone that continues to show us support in the form of well-wishes, food, offers to help, activities for Sadie, texts, emails, etc. Now, if anyone knows of a good house cleaner in the area - feel free to send the info!  It's so great to be surrounded by so much love.  Hopefully a good-news post to follow shortly.

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