Our boy was born 4 weeks ago... it's either been the longest 4 weeks of our lives, or the fastest... not quite sure. Feeling a lot of mixed emotions this week. There have been some small milestones reached, like Ryan becoming a member of the kilo club, the fact that he's continuing to have full feeds, and that we've had him out for cuddles 2 days in a row. On the other hand, it's been a week of realizing that we may have to take off our rose-coloured glasses, and acknowledge the fact that we have a very sick little boy. Not sick with a cold or infection, but his lungs are bad. He started off with a positive response to the steroid treatment and they were able to ease up on some of the ventilation, but today, took a bit of a step backwards and they had to increase ventilation again. A chest x-ray showed that there has been no substantial improvement in the appearance of his lungs. Yet. Today is the last 'full' dose of the steroid, then they wean down to a half-dose for 3 days, and from there, an even smaller dose for the last 3 days. He's got 6 days to have some substantial improvement. If he doesn't improve after that, I'm not really sure what will come next. Another discussion with the doctors... Scary, sad, and frustrating all at the same time.
Sadie continues to be our happy-go-lucky little girl, which is a joy to see... unfortunately, it feels like we don't see her all that often and when we do, we're either exhausted from a day at the hospital, or emotionally drained. I'm saying this because today, I am both of those. Not every day is like that though - and still, family and friends are doing their best to lighten the load.
On my list tomorrow is to get pictures posted... lots of cuddle time pics :-)
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