Sunday, May 20, 2012

May 19/20 - Days 21 & 22

Sorry for the delay... nope - updates aren't broken and everyone's ok... just been a busy couple of days. I figured everyone was outside enjoying the sunny weather, but I've been informed by a reliable source that people get nervous when I don't write.  Don't worry - no news is good news for now. We've had Sadie sleeping at home for the last couple of nights, so I basically have an hour to spare before going to bed.  Last night was Game of Thrones catch up.

Ryan is doing ok.   He's hit the 2 lb mark! His lungs aren't doing so well, unfortunately.  We knew this was going to be an issue, obviously we hoped it wouldn't.  He's not able to get rid of enough carbon dioxide and this can cause complications.  The doctor said she would like to treat with steroids.  The downfall is that steroids will stop his growth.  At this point, growing is mega-important for his brain.  Out come the scales to weigh the pros vs. cons.  Turns out that this point it's better to try to get his lungs better so he can go on a new ventilator, that way he has a better chance to grow.  He's been tolerating 'full feeds' lately (that means 8cc every 2 hrs).  We've been told that this is fantastic, because lots of these babes don't tolerate their feeds as well. Finally, we're doing good at something!  We don't know for sure if/when the steroid treatment will start but we're prepared for the phone call.  For some reason whenever I think of steroids I think about the joke from the early 90's about Ben Johnson saying "I don't take no stereos"... I can't remember what the whole joke is.

Had a nice family dinner at my parent's house.  Sadie loved having her aunties around.  She LOVED having some water play after dinner and especially loved eating ice cream in her bathing suit.  We'll be back to the hospital tomorrow night, in order to enjoy some more outside time during the day. 

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